Name: Robin G.
Residence: Vancouver, British Columbia
Conditions: Chronic migraine
First Diagnosed: 22 years ago
Q: What is the most frustrating thing about your life?
A: The hardest part about having migraines everyday is the time I lose with my young family--lying in my dark room with an ice pack and pillow over my head, knowing that my husband and three young daughters are living life without me. I have to cancel so many appointments or date nights that it leaves me sad that I can't have a "normal" life. Its so difficult to have no control over my life and to depend so much on others to help me everyday.
Q: What are you most thankful for?
A: I am thankful to be alive. I am thankful for my amazing family and their support physically, emotionally and mentally. I'm also grateful to have such an understanding doctor who truly cares about what I go through. I honestly have to say, though, that I am most thankful for knowing that my life is in God's hands. I know that I can get through this with God's help and His promise of a pain free life in heaven.
Q: How do you manage your condition?
A: I manage my "extreme" migraines with medication and by lying in a dark quiet room. Even though it can go on for several days, I just have to remember, "This too shall pass." For my daily migraines it simply depends on the severity of them. I can almost never go for more than eight hours without the help of medications. I wear sunglasses everywhere which helps with my sensitivity to light. I can't drink any amount of alcohol, as it's a major trigger for me. I watch what I eat. The weather is one thing I can't manage.
Q: Where do you get the greatest support?
A: My parents. My dad suffered for over 30 years with chronic migraines but somehow managed to live life, save lives and be an amazing husband and an even better dad (I'm a proud daughter). My mom also suffers from chronic pain (deep vein thrombosis). They have always been there for me, through 3 am phone calls, making a four-hour trip to come over and help, and praying for me. I think I have the best support system anyone could ask for. I am very blessed.
Q: What is your idea of happiness?
A: Happiness is a state of mind! If I choose to be happy, I will be. Living everyday with a chronic illness puts life into a completely different perspective. I treasure every moment with my daughters and the rest of my family. I do not take time for granted. When I spend so much time lying in bed in complete and utter pain, every minute counts. I take advantage of those rare days when I'm feeling OK or even well. Those times are what make me truly happy.
